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Baby Mieko

Mieko Johnson was born March 9, 2004 with a rare genetic disorder, Trisomy 18.

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"We wanted whatever time we had with her, whether it was a few more months in utero, whether that was a few hours, we wanted that time," said Mieko's mom. Mieko's parents found out about her genetic disorder before she was born.

Mieko weighed 4 pounds and 10 ounces at birth.

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