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Court Takes Up Suit Over Muscular Dystrophy Drug

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Aug 17, 2008 1:22 pm US/Central

Court Takes Up Suit Over Muscular Dystrophy Drug

WASHINGTON (AP) ― A federal court in New Jersey is scheduled to take up a Minnesota family's lawsuit Tuesday seeking access to an experimental drug for a fatal form of muscular dystrophy.

Jacob Gunvalson and his parents want PTC Therapeutics of South Plainfield, New Jersey, to provide him with the drug, PTC124. The family claims that the company promised them Jacob would have access to the drug but then broke its word. The company denies making that assurance.

Jacob suffers from Duchenne muscular dystrophy, a genetic, degenerative disease that mostly affects young boys. Typically, those who suffer from it die in their 20s because of weakness in their heart and lung muscles. The family says that without PTC124, Jacob will die.



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